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Health - Conditions and Diseases - Blood Disorders

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Looking for People with XLP/Duncan's Syndrome
- The author David Rodgerson, offers information about a condition called XLP, X-Linked Lymphoproliferative Disease.
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Cryoglobulinemia
- Types I, II, II, treatment and information, cryofiltration apheresis.
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Cells of the Blood
- Click on any of the cells to identify the cell type and get further information.
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Bernard-Soulier Syndrome
- Information for physicians and patients to learn more about this syndrome.
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BloodGivers
- FAQs about blood donation, examples of how it is used, basic facts and blood types and compatibility.
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MediScene
- Provides medical information, questions and answers about blood, lymph nodes and clotting.
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BloodBook
- Provides information about blood, facts, transfusion, news, safety, diseases, disorders, autologous blood collection and storage.
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HealtHub
- A brief introduction of polycythemia, followed by links to overviews, research articles, diagnosis and treatment methods.
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Pediatric Oncall- Routine Blood Test
- Brief description of the complete blood count.
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Blood Types - DrGreene.com
- Clear patient-oriented information on the basics of different blood types.
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Mayo Clinic
- A discussion on the color of blood, when it changes, and why.
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Hemophilia Galaxy
- Support information specifically designed for people with hemophilia, their families, and health care professionals.
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Choice Source Therapeutics
- Provide hemophilia care for patients.
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Australian Haemophilia Youth Group
- Support group for hemophiliacs.
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Hemophilia Ontario
- Committed to improve the quality of life of people affected by hemophilia and related blood conditions, and to work towards a cure.
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Hemophilia Resource Network
- Clinical care pathways and administrative services to hematologists managing hospitalized persons with hemophilia.
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Hemophilia
- Disease management, progress and possible cures.
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Tonya's Page
- This page is dedicated to my son, who has hemophilia.
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Medical And Hemophilia References
- Personal page from Rick and Linda Thomas.
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Hemophilia and Thrombosis Center of Nevada
- Information about the organization, bleeding and clotting disorders, research projects and contact details.
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Gentiva Health Services
- Designed to help you understand hemophilia, von Willebrand's disease and other bleeding disorders and provide valuable information.
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Haemophilia Forum
- Dedicated to supplying information on haemophilia to medical and health care professionals, providing an excellent opportunity to interact with worldwide specialists in the field of haematology.
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Hemophilia Club
- Global Network of people suffering with Hemophilia & their families.
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General Practice Notebook - Haemophilia
- Clinically-oriented information.
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FPnotebook: Coagulation and Bleeding Disorders
- Information in note form for clinicians.
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Merck Manual: Hemophilia
- Information for doctors from this online textbook.
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Hemophilia Village
- Provides information on the signs, symptoms, causes and treatments of hemophilia A and B.
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MSN Learning & Research: Hemophilia
- Hemophilia, hereditary blood disease involving the inability of blood to clot, or coagulate, leading to hemorrhage, or bleeding.
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Canadian Hemophilia Society
- Dedicated to improving the quality of life for persons with hemophilia and other inherited bleeding disorders, as well as ensuring the safety of the blood supply for all Canadians.
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National Hemophilia Foundation
- News, research, programs and resources.
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The Hemophilia Foundation of Michigan
- Information about the organization, the services offered, education, research, camp programs and events.
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Haemophilia Society of New Zealand
- Information about the organization, resources and contact details.
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Hemophilia.com
- Hemophilia Association in America.
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Hemophilia Foundation of Nevada
- A nonprofit consumer advocacy and service organization founded in 1990 to help meet the vast education and support needs of the bleeding disorders community in Nevada.
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Hemophilia Society British Columbia Chapter
- Information about the organization and its mission, news archive, links and contact details. Also an in depth look at the disease itself including management.
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South African Haemophilia Foundation
- Online help for haemophilia sufferers.
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UK Haemophilia Society
- Working to secure the best possible care, treatment and support for people with haemophilia, related bleeding disorders, and their families.
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European Hemophilia Consortium
- Umbrella organisation of 36 haemophilia societies in Europe.
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Hemophilia And VonWillebrand's Education Network
- HAVEN is an independent organization in Northwestern PA. W Provides patients and their families with information about their condition, treatment options and patient rights.
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St George's Hospital Haemophilia Centre
- Offers a resource for anyone who is interested in the work of the Centre. Also includes a comprehensive library of information leaflets that you can order on-line.
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von Willebrand's Disease
- University of Carolina's information on diagnosis and treatment.
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Obgynnet's von Willebrand Disease Information Sheet
- Specific information on how this hereditary disease impacts women.
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The Other Bleeding Disorder
- Information on the three types of von Willebrand Disease as well as treatments.
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Matt Klimshuk - von Willebrand's Disease
- Information on von Willebrand's Disease and links to von Willebrand's and Hemophilia sites.
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WebMD Canada - Von Willebrand's Disease
- Information on definition, causes, incidence and risk factors, symptoms and signs and treatment as well as expectations, prognosis and complications.
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von Willebrands Disease: Management and Treatment in the Home Setting
- Patient self-care helps ward off complications of excessive hemorrhagic episodes in this inherited bleeding disorder.
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WebMD - Von Willebrand's Disease
- Comprehensive information on definition, causes, incidence and risk factors as well as symptoms, signs and tests, treatment, prognosis and complications.
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Many Faces of von Willebrand's Disease
- Information including Pediatric studies.
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Von Willebrand Disease Fact Sheet
- Information from Hemophilia Resources of America.
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Treatment of von willebrand Disease
- Information on symptoms, testing and treatment.
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Nursing Spectrum- Career Fitness Online
- von Willebrand Disease. The commonly inherited bleeding disorder. Examples and treatments.
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All About Bleeding
- A resource for education, guidance and support for people who have or suspect they have von Willebrand disease. Offers personalized tools, information resources, and community support.
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Canadian Hemophilia Society
- Offers information about Von Willebrand disease. Includes the types, the symptoms, treatment, and heredity.
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Anemia, Evaluation of
- Márcia Datz, Pediatric Resident University of São Paulo Brazil. Definition, symptoms, testing, and types of anemia.
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Medical Self-Care
- Self-care for iron deficiency and folic acid deficiency anemias.
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Iron Disorders Institute
- Provides information about disorders of iron such as hemochromatosis, acquired iron overload , juvenile hemochromatosis , African siderosis , thalassemia , porphyria cutanea tarda , sideroblastic anemia, iron-deficiency anemia and anemia of chronic disease.
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MedicineNet.com
- An in depth look at anemia including a description, detection, hemoglobin, the causes and treatment.
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The Merck Manual
- A description of anemia and discussion about the different laboratory tests.
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Anemias Caused by Blood Loss
- Symptoms and signs, laboratory findings and treatment are looked at by The Merck Manual.
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Caused by Deficient Erythropoiesis
- A look at iron metabolism, laboratory tests, enemias of iron deficiency, of chronic disease, of renal disease, aplastic, myelophthisic, and myelodysplasia to mention a few of the topics covered.
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Anemias Caused By Excessive Hemolysis
- Merck Manual takes an in depth look at these disorders.
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4Anaemia
- Offers information and services about anemia in kidney diseases and different cancers for patients, relatives and care givers. Professionals get access to a literature service, congress calendar.
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Catherine's Page
- Catherine is a currently undergoing a bone marrow transplant. Her page is for those interested in aplastic anemia, myelodysplasia, and bone marrow transplant issues. Includes links to BMT resources.
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SavonHealth
- A comprehensive anemia information site.
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An Approach to Diagnosis
- An in depth study and article about anemia by Thomas G. DeLoughery, Associate Professor of Medicine.
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Health4Her
- An article about anemia with an explanation as to what it is, the role of iron in the body, how much iron a woman needs, who is at risk, diagnosis and prevention.
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Anemia Iron-Deficiency: Natural HealthLink
- Detailed information on sickle cell anemia - symptoms, treatment and diet changes that may be helpful for iron deficiency.
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Adam.com: An Overview
- A definition of anemia and lists specific types with links for further investigation.
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Learn about Iron Deficiency Anemia
- Article describing symptoms and treatments for Anemia.
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Anemia and Iron Status
- Overview of the causes of Anemia together with downloadable recommendations on how to prevent it.
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The Body: Fatigue and Anemia
- Listing of resources for anemia. [Currently listed under HIV].
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Health and Science Research Institute - Anemia
- Overview of the condition with suggested treatments.
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Healthworld Online - Anemia
- An overview of the condition together with self help diagnosis.
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Yahoo! Groups: anemia
- Discussion list on promotion health through the controling of Anemia.
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Anemia Lifeline
- Information on symptoms, diagnosis and treatment of anemia.
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iVillage.com
- Information on the symptoms and treatment of anemia on iVillageHealth.
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General Practice Notebook - Anaemia
- Clinically-oriented information on the different types.
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Thalassemia in Malaysia
- Gives concise information about this genetic blood disorder disease in Malaysia and encourages affected parents to join the local support group.
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Children's Hospital Oakland Thalassemia Center
- A comprehensive information center for patients and doctors about thalassemia.
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Persatuan Thalassaemia Melaka (PTM)
- Malacca association of Thalassemia. To help all Thalassaemia patient at Malacca (Malaysia) with proper treatment.
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Joint Center for Sickle Cell and Thalassemic Disorders
- Overview of hemoglobin disorders, iron overload, and their treatment
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IMPACT Children Foundation
- Creating awareness of Thalassemia in high-risk communities and funding medical research to find an effective cure and safe treatment of this illness. Includes disease information, links and contact details.
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Sarawak Thalassaemia Society
- Malaysian site offering information about causes and treatment.
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Thalassemia: Life
- A personal website by Thal Girl describing this disease, who has it, medication and treatment.
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Thalassaemia On-line
- Frequently asked questions and worldwide Thalassaemia associations' addresses.
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Sleeptight.com Thalassemia
- Definition of the disorder and links.
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Cooley's Anemia: Rochester Chapter
- The Rochester Chapter of the Cooley's Anemia Foundation with information about Thalassemia and a Yahoo Support Group.
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Pat Girondi and the Fight Against Thalassaemia
- Background about fundraiser for thalassaemia research.
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Berloni Foundation Against Thalassemia
- Information about Italian foundation raising funds for a bone marrow transplantation centre which treats Thalassemic patients.
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Thalassemia Hub
- Links to information and resources.
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Cooley's Anemia Foundation
- Non-profit organisation operational since 1954 giving a wide amount of information about thalassemia in the U.S.
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Australian Thalassaemia Association
- Official site based at Murdoch University.
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Emirates Thalassemia Society
- To assist and help patients suffering from Thalassemia.
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United Kingdom Thalassaemia Society
- Offers information, book and publication lists, and a chat board.
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Berloni Foundation
- Resource against thalassemia based at Italy.
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Sarawak Thalassaemia Society
- Serving as a network of information and support groups for the families of the thalasseamic patients.
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Thalassaemeia Association Malaysia
- A website for thalassaemic patients, parents and friends to obtain information and news about Thalassaemia in Malaysia.
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Thalassaemia International Federation
- An International non-governmental organisation coordinating the various issues of thalassaemia associations globally.
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KITCC
- Organisation based in Pakistan.
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Thalassemics India
- Non government organisation struggling against genetic blood disorder, thalassaemia. Creates better transfusion, treatment and prevention facilities and collects funds, equipments, medicines for needy thalassaemics.
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Hope for Henry
- This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.
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Fanconi Anemia Research Fund
- To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
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Fanconi Anemia: the Frohnmayer Family's Experience
- The personal story of David and Lynn Frohnmayer whose three daughters were born with Fanconi anemia, an inherited, usually fatal illness.
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Diamond-Blackfan Syndrome
- A definition, epidemiology, clinical features, complications, investigations and management.
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International Fanconi Anemia Registry
- A study being done on patients with fanconi anemia to obtain clinical and genetic information. Genetic counseling and dietary instruction will be provided.
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Diamond Blackfan Anemia
- Also known as hypoplastic anemia and pure red cell aplasia. Information and support for patients and families; DBA registry; donations to further research; and fund-raising.
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Fanconi Canada
- Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
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Fanconi Anaemia
- A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area.
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Fanconi Anemia Fact Sheet - Jewish Genetic Diseases
- Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
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Fanconi Anaemia
- A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin.
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B Positive, Inc.
- A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas.
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Alex and Matt Pearl
- Personal stories of two children fighting Fanconi Anemia.
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Fanconi Anemia Web
- An informational site for this disorder.
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Yahoo! Groups: blackfan
- Open mailing list for Diamond Black Fan Anemia sufferers.
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Yahoo! Groups: fanconi
- Discussion list for fanconi sufferers.
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International Fanconi Anemia Registry
- Provides contact information, and an overview of what the study aims to achieve.
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Family Village: Fanconi Anemia
- Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease.
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Adam Day
- Learn about a boy who passed away after a fight with Fanconi anemia. Find out how to make a donation to the Fanconi Anemia Research Fund.
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Fanconi Anemia Fact Sheet - University of Pittsburgh
- Brochure about its diagnosis and treatment published by the University of Pittsburgh Department of Human Genetics, including links to support and diagnosis resources.
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Favism
- Information on this disorder, Glucose-6-Phosphate Dehydrogenase enzyme deficiency. Including lists of drugs and food to avoid, medical articles, and related links.
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Hemolytic Anemia
- A brief look at the causes of this disorder and its complications.
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Vanderbildt Medical Center
- An in depth article about evans syndrome.
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Family Practice Notebook
- Hematology and oncology of hemolytic anemia. A look at the causes, lab work and management of this disorder.
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Seeking Information From Others
- Would like to hear from other families with children who have acquired auto immune hemolytic anemia.
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Evans Syndrome
- An email group at eGroups whose purpose is sharing information and support to those individuals who have or know someone with Evans Syndrome. Thrombocytopenia, hemolytic anemia and neutropenia.
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Adam.com
- Overview of hemolytic anemia giving alternative names, a definition, causes, incidence and risk factors.
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Virology Down Under
- Tests to check for the presence of hemolytic anemia.
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Pernicious Anemia Hub
- A brief definition, followed by links to research articles, overviews, case reports and clinical trials.
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University of Maryland Medicine
- A definition of pernicious anemia, the causes, symptoms, diagnosis and treatment are discussed.
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Anemia Cases
- A case study of a 50 year old woman complaining of anorexia and shortness of breath for the past few weeks.
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Pernicious.Anemia
- An in-depth overview of pernicious Anemia and links to other informative sites.
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InteliHealth: Pernicious Anemia
- Details about this disorder, what it is, the symptoms, diagnosis, prevention, treatment, prognosis and when to call a doctor.
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SmartMed Centers
- An article about pernicious anemia with a full explanation of what it is, some history and treatment.
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Adam.com: An Overview
- Looks at pernicious anemia, its causes, incidence and risk factors.
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Megaloblastic Anemia
- An article by Thomas G. DeLoughery, Associate Professor of Medicine discussing all aspects of this disorder.
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Genetic Mutations Linked to Rare Metabolic Disease
- Columbus, Ohio: Researchers have identified two mutations in a single gene as the cause of a rare disease, megaloblastic anemia.
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Adam.com - An Overview
- A look at megaloblastic anemia, its causes, incidence and risk factors.
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Virology Down Under
- Haematological profile, diagnosis and treatment of megaloblastic anemia. Vitamin B12 deficiency and frolic acid deficiency.
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Aplastic Anemia Foundation of America
- Fighting Aplastic Anemia, Myelodysplastic Syndromes, and other bone marrow failure.
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Medical Education Information Center
- Etiology, incidence, diagnosis and treatment of aplastic anemia.
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Aplastic Anemia Answer Book: MEdIC -
- Patient information about this disease and all aspects of bone marrow. Diagnoses, treatment and some helpful hints are offered.
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Richie has Severe Aplastic Anemia
- This page chronicles Richie's struggle with this disease. It is a source of information for hematology, bone marrow, transplants, and immunosuppression therapy. Links for support groups and additional information.
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Ilir Kullolli
- Includes information about aplastic anemia and Ilir's progress with this disease.
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Aplastic Anemia
- An introduction, etiology, incidence, diagnosis and treatment are some of the topics discussed.
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Introduction for the General Physician
- MEdIC - An explanation of aplastic anemia, followed by a look at the diagnosing, treatment and prognosis.
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Health Explorer - Iron Overload
- MEdIC - Aplastic anemia patients who receive repeated blood cell transfussions may develop iron overload. A look at this condition and who needs treatment.
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Earl J. Goldberg Aplastic Anemia Foundation
- Offers information about the organization, contact details, education and awareness and patient services.
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Aplastic Anemia Discussion Forum
- Sufferer Bruce Lande moderates a site specifically dedicated to AA. Includes stories of others, links, suggestions and other useful information.
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Aplastic Anemia
- A positive survival story.
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Traditional Chinese Medicine and Aplastic Anemia
- Describes in detail how TCM practitioners in China solve this disorder with traditional Chinese strategies and herbs.
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Aplastic Anemia
- Fact sheet from the National Bone Marrow Program for patients. Also offers a link to an advanced factsheet for clinicians.
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Sickle Cell Disease Association of America
- Education, advocacy and other initiatives which promote awareness and support for sickle cell programs and patients.
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Sickle Cell Disease
- Personal fight against this disease. Poems, articles, links and photos.
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My Sickle Cell Homepage
- Provides a first hand look at Sickle Cell Anemia, built by a person suffering from the disease. Frequently asked questions and a personal diary of the owner's own battle with this disease.
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Have A Heart 4 Sickle Cell Anemia Foundation
- To educate and inform patients, their families, and the community at large.
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Mamas Health
- A definition of sickle cell anemia, what it is, how one gets it, symptoms, statistics and testing.
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Sickle Cell Disease: Information for Health Professionals
- Basic facts, symptoms, how to recognise a crisis, diagnosis and management are some of the topics covered.
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Joint Center for Sickle Cell and Thalassemic Disorders
- Gives an evaluation of the causes and treatments of sickle cell disease as well as current research. Information is available both for lay persons as well as health care providers.
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Sickle Cell Society
- A UK-based charity which provides care and information. Site includes research findings, pain management techniques, and teaching resources.
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Awake Correspondent in Nigeria
- An article about sickle-cell anemia with an explanation, the symptoms, treatment, prevention and how it is passed on.
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Natural History of Sickle Cell Disease in India
- Lists and describes the contribution of Dr. Bimal Chandra Kar. Patient resources, papers and publications.
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Adam.com: Sickle Cell Anemia
- Takes a look at this disorder with a definition, causes, incidence and risk factors.
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Sickle Cell Disease Review
- Promotes and disseminates research into the scientific, clinical and social aspects of this disorder. Literature review, bibliography, and general information on the disease.
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Avoiding a Sickle Cell Crisis
- Advice from FamilyDoctor.org on ways to avoid crises.
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Hertz Nazaire - Sickle Cell Patient Information
- A comprehensive, patient run sickle cell information site. The information is presented from the patient's point of view. There are discussion boards, links, and art.
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Sickle Cell Information Center
- Current information for health care providers, patients, the public, teachers and others with online treatment guideline books, a tutorial, multiple links to other sickle cell sites and a directory of clinics in the US.
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Sickle Cell Advocates for Research and Empowerment (S. C.A. R.E. )
- Patient-oriented information.
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The American Sickle Cell Anemia Association
- A non-profit organisation based in Cleveland Ohio whose objectives are to raise awareness of the condition. Features educational material, FAQs, support groups and a message board.
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Sickle Cell Course for Nurses
- The basics about sickle cell disease. Pictures of common presentations are provided.
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The Sickle Cell Foundation of Alberta
- Educates the public about sickle cell disease and provides support for carriers of the trait and their families.
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Sickle Cell Disease
- Information for school personnel.
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Unit for the Social Study of Thalassaemia and Sickle Cell
- A UK based social studies site for thalassaemia and sickle cell, including bibliography, quiz, and links to other major sites.
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Severe Chronic Neutropenia International Registry
- A disease registry which was established in Australia, Canada, the European Community and the United States in March, 1994. Information for patients and families and health care providers.
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Neutropenia Support Association
- An extensive look at this disorder with information about the blood, the causes, the different types, symptoms and the treatment.
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Neutropenia OnLine
- Register, become a member and participate in a forum about this disorder.
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Neutropenia
- A description of this blood disorder along with the causes, symptoms and quite an extensive look at the medication for treatment. By Tirgan Oncology Associates.
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Mayo Clinic
- Answers a patient question as to what neutropenia is and the success of treatment.
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Genomelink Database
- Links to information and resources for neutropenia.
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Nationanl Eosinophilia-Myalgia Syndrome Network
- A non-profit organization dedicated to helping EMS survivors and their families by offering educational information and peer support. NEMSN is also committed to encouraging research to improve treatment for L-tryptophan-induced EMS and to increasing awareness of the cause and effects of the disease.
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Eosinophilia
- A brief definition of this disorder and eosinophils.
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Eosinophilia Myalgia Syndrome Support Site
- Information and support site for people who ingested L-Trytophan in the 1980's and are suffering from EMS.
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Yahoo Groups : Eosinophilia Myalgia Syndrome
- Information for those wishing to learn more about issues relating to EMS. Links for web sites pertaining to medical data, the history of the EMS epidemic and support.
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NetDoctor
- Facts about eosinophilia including what it is, how and when it occurs, symptoms, diagnosis and treatment.
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Acute Pulmonary Eosinophilia: Loeffler's Syndrome
- Adam.com defines this disorder, its causes, incidence and risk factors.
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Eosinophilia-Myalgia
- Advocacy, information, and support for those with Eosinophilia-Myalgia (EMS).
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Eosinophilia-Myalgia Syndrome
- Offers Advocacy, information, and support for EMS.
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Myelodysplastic Syndromes Foundation
- Information about the organization as well as the disease itself. Offers research updates, international registry, continuing education and forums.
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A Patient's View
- A discussion of myelodysplasia syndromes for the patient, covering a description of the illness and possible treatments.
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Myelodysplastic Syndromes
- A description of what these diseases are, alternate names, and links for both patient and professional information.
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Myelodysplastic Syndromes
- General information, cellular classification, stage information, treatment options, de nova, secondary and previously treated myelodysplastic syndromes.
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The Myeloproliferative Disorders
- Information about such disorders as polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelofibrosis, myelodysplastic syndrome and chronic myelocytic leukemia.
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Myeloproliferative Disease Support Group and Mailing List
- Information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, myelofibrosis. For patients and health professionals. Archives available.
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Myelodysplastic Syndromes Hub
- Links to information and resources for myelodysplastic syndromes.
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Leukaemia Research Fund
- A look at the causes, types, signs and symptoms, diagnosis, treatment and prognosis of myelodysplastic syndromes .
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MPD Foundation
- Learn about this organization whose mission is to raise public awareness, support research, investigate new treatments, and eventually to find a cure for myeloproliferative disorders.
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Acquired Bleeding Disorders
- An article by Thomas G. DeLoughery, Associate Professor of Medicine. Platelet transfusion therapy and dysfunctional platelets are discussed.
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Thrombocytopenia - Overview
- Adam.com looks at this disorder and its causes, incidence and risk factors.
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Thrombocytopenia During Pregnancy
- An in depth look at gestational thrombocytopenia, idiopathic thrombocytopenic purpura, HELLP syndrome, toxemia of pregnancy, TTP and HUS, systemic lupus erythematosus and APA syndrome.
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Immune Thrombocytopenic Purpura
- What it is, symptoms of ITP, diagnosis, acute and chronic forms and treatment.
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Adult Chronic Immune Thrombocytopenic Purpura
- A guide for patients. A description of this disease followed by an in depth look.
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Idiopathic Thrombocytopenic Purpura
- ITP: A look at what these words actually mean, what he causes are, who gets it, diagnosis, how it affects children and adults and pregnant women.
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Immune Thrombocytopenic Purpura
- A look at the symptoms, diagnosis and treatment of this disorder. Where to look for more information.
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General Practice Notebook - Thrombocytopenia
- Clinically-oriented information.
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Glanzmann Thrombasthenia
- Supporting those affected by GT and reseachers. Message board, contacts and related information on the condition.
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Virtual Hospital: Bleeding Disorders
- Differentiation of platelet versus coagulation defects, presentation, bleeding caused by qualitative platelet disorders and many more topics.
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Guidelines on Therapeutic Products to Treat Haemophilia and Other Hereditary Coagulation Disorders
- Introduction and methods, manufacture of therapeutic coagulation factor concentrates, safety data on which recommendations are based, licensing status, therapeutic guidelines, clinical audit and a review of the guidelines.
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Molecular Genetics of Blood Clotting
- David Ginsburg, M.D: An article covering von Willebrand Factor, coagulation factor V, plasminogen activator inhibitor-1, primary pulmonary hypertension and bone marrow transplantation.
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Protein S Deficiency and Thrombophilia
- Information about these rare medical conditions, anticoagulant therapy, research and online forum.
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Hypercoagulable States
- Thomas G. DeLoughery Associate Professor of Medicine defines this term and does an in depth article.
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Excessive Blood Clotting
- Background, causes, symptoms, and treatment of hypercoagulability.
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International Health News Database
- Summaries of the latest research concerning fish oils and blood coagulation.
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Prothrombin Gene Mutation
- Discusses study results and whether or not thrombophilia patients should be tested for this mutation.
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Medline Plus: Congenital Protein C or S Deficiency
- Brief information about these hypercoagulability disorders including causes, treatment, and prognosis.
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Viewpoint Online: Coagulation
- Features articles about blood coagulation disorders including activated protein C resistance, von Willbrand's disease, and hypercoagulability.
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Medline Plus: Factor X Deficiency
- Information about this inherited disorder that causes abnormal bleeding including causes, treatment, and prognosis.
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Medline Plus: Factor V Deficiency
- Provides brief information about this inherited bleeding disorder, which is similar to hemophilia. Includes causes, symptoms, and prognosis.
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Medline Plus: Factor VII Deficiency
- Brief information about this inherited bleeding disorder including causes, symptoms, and prognosis.
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Medline Plus: Factor XII Deficiency
- Also known as Hageman factor, this is a congenital coagulation disorder that causes prolonged coagulation in a test tube but does not cause abnormal bleeding. Includes brief information.
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UIUC Hematology Resource Page
- Features diagrams and information about the various thrombophilic genetic markers, general information about clotting, glossary, and list of research sources.
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Factor VIII Activity and Thrombophilia Risk
- Brief overview of the link between elevated factor VIII levels and excessive clotting. Includes list of sources.
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The Factor VIIa Source
- Information about topics related to the pathophysiology, pharmacology, and clinical aspects of bleeding, coagulation, and hemostasis, including information about recombinant coagulation Factor VIIa.
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Living with Factor V Leiden
- Factor V Leiden is the most common hereditary blood coagulation disorder in the United States. It is present in 5% of the American population.
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Activated Protein C Resistance
- Discusses the thrombotic risks of this inherited disorder, also known as Factor V Leiden.
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The Role of Activated Protein C Resistance in the Pathogenesis of Venous Thrombosis
- Center for Disease Control's page discussing the background of this disorder including study results, testing, and complications.
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University of Illinois Patient Resources
- Description of factor V Leiden, its risks and treatment options. Also discusses the impact of other conditions on this disease.
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Yahoo! Groups: Leiden Factor V Support
- Message board and chat room for people diagnosed with the Factor V Leiden genetic disorder.

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